M.E. Myself and I...
I have suffered from ME/CFS for about 3 years, although I do think that it began to show after a long period of stress 5 years ago when a close friend of mine committed suicide.
Like most of you, I've had all the blood tests, all of them clear. I was labelled as depressed, put on anti depressents for 2 years. Of course I was depressed! I was and still am battling an illness that no one would acknowledge.
My symptoms have varied over time. Initially it was fatigue and IBS. It progressed with fybromyalgia, back pain, leg pain, headaches, constant ones. My sleep has always unrefreshing, sometimes I feel like I haven't slept for months. Then came the night sweats, the constant sore throat, neck pain, light headedness, muscle weakness, physical shaking.
3 months ago I collapsed at work. I work full time and have done for ages. My life consists of work and rest. That is all. I came to the conclusion that my employer needed to know what was wrong with me, and they have been supportive, adjusting my breaks for me and ensuring I do as many sit down jobs as possible. For me there is no two ways about it, I cannot afford not to work, so I have to, even if it means dismissing anything else in my life.
At this current moment in time my ME isn't bad. I live with it and have to take each day as it comes. Because one day I can manage a full day at work, another day I feel like I cannot even get out of bed.
All I can really say is that it would make my life a lot easier if I had a solid support network round me. I can understand how frustrating this condition is to live with, but is just as if not more frustrating for me.
Life is too short, life can be beautiful, but life can be so damn cruel too.
Added: 6th July 2011